Here is Micah's 3rd birthday montage. The first song is his favorite song, so I had to use it! The lyrics to all three songs are below if you want to read them. Enjoy!
Blue October
Jump Rope
Remember how you used to say
You couldn't wait till tomorrow for a brand new day
no fuss when ya had to ride the bus
You just add a little blush
To paralyze your school crush
Now you're older and the weight is on your shoulder
Make the world a little colder
No more hidin in the old day
Be strong
Don't you give up hope
It will get hard
Life's like a jump rope
Up down
Up down
Up down
Up down yeah
Cause it will get hard
Remember life's like a jump rope
Up down
Up down
Up down
Up down yeah
It will get hard
Cause it will get hard
There'll be a bump and there will be a bruise
There'll be alarms and there will be a snooze
There'll be a path that you will have to choose
There'll be a win and there will be a lose and
You gotta hold your head up high and
Watch all the negative go by
Don't ever be ashamed to cry
You go ahead
Cause life's like a jump rope
Up down
Up down
Up down
Up down yeah
It will get hard
Remember life's like a jump rope
Up down
Up down
Up down
Up down yeah
It will get hard
Come on
I want to tell you that everything will be okay
That everything will eventually turn itself to gold
So keep pushing through it all
Don't follow, lead the way
Don't lose yourself or your hope
Cause life's like a jump rope
Up down
Up down
Up down
Up down yeah
You stomp your feet so hard you make it pound
Raise the bottom to the top
And now we're never coming down
Up down stomp your feet spin around
Clap hands to the rhythm
Then you slip down
You stomp your feet so hard you make it pound
Raise the bottom to the top
And now we're never coming down
Up down
Up down
Up down
Up down yeah
It will get hard
Remember life's like a jump rope
Up down
Up down
Up down
Up down yeah
It will get hard
Cause it will get hard
Up down
Up down
Up down
Up down yeah
Life's like a jump rope
Up down
Up down
Up down
Up down yeah
Whoa oh
Cause life's like a jump rope
Rascal Flatts
My Wish
I hope the days come easy and the moments pass slow
And each road leads you where you want to go
And if you’re faced with the choice and you have to choose
I hope you choose the one that means the most to you
And if one door opens to another door closed
I hope you keep on walkin’ ‘til you find the window
If it’s cold outside, show the world the warmth of your smile
But more than anything, more than anything
Chorus
My wish for you
Is that this life becomes all that you want it to
Your dreams stay big, your worries stay small
You never need to carry more than you can hold
And while you’re out there gettin’ where you’re gettin’ to
I hope you know somebody loves you
And wants the same things too
Yeah, this is my wish
I hope you never look back but you never forget
All the ones who love you
And the place you left
I hope you always forgive and you never regret
And you help somebody every chance you get
Oh, you find God’s grace in every mistake
And always give more than you take
But more than anything, yeah more than anything
Chorus x2
My wish for you
Is that this life becomes all that you want it to
Your dreams stay big, your worries stay small
You never need to carry more than you can hold
And while you’re out there gettin’ where you’re gettin’ to
I hope you know somebody loves you
And wants the same things too
Yeah, this is my wish
This is my wish
I hope you know somebody loves you
May all your dreams stay big
Blue October
Graceful Dancing
Describe the Pain
It Choked Your Reality
It’s All in Your Mind
She Said It
Instead You Go Graceful Dancing
You Close the Door
On the War I Started Last Halloween
I’m Gonna Be Fine Again
You Got to Keep Graceful Dancing
Oh
Here We Are
And You’re a Super Star On Your Own
And I’m Looking Over Your Shoulder
Getting Older and God Only Knows
That Here We Are
And You’re a Super Star On Your Own
Now Here We Are
Your Sunset Reigns
Like a Bullet Hole
Trees Only Seems For Hanging
A Moon Is a Target Range
And Rivers Seem Only For Drowning
You Fall Away and Then You Starve
To Finish Your Painting
Well Its Gonna Take Time My Friends
You Have to Keep Graceful Dancing
Oh
Here We Are
And You’re a Super Star On Your Own
And I’m Looking Over Your Shoulder Getting Older
And God Only Knows That Here We Are
And You’re a Super Star On Your Own
Now Here We Are
Who Knows
That Here We Are
And You’re a Super Star On Your Own
And I’m Looking Over Your Shoulder Getting Older
And God Only Knows
That Here We Are
And You’re a Super Star On Your Own
Now Here We Are
Wednesday, July 15, 2009
Monday, May 11, 2009
Dance Rehearsal and Recital May 8-9
Here are the pictures from the dance recital and rehearsal. Leah and Micah both performed...and MICAH is wearing black pants, not tights to any of you who are wondering. And I do not want any lip about a boy in dance, he did great and he still likes girls!!!!!!!!!!
Enjoy!!!
Enjoy!!!
St. Louis May 1st weekend
Here are the pictures from our trip to St. Louis. If you look close, you may actually find a shot of Samantha in there and a few of Jonathan too :) Enjoy! I HAD to use the kids favorite song "So What" by Pink!
Saturday, February 14, 2009
ANNOUNCEMENT!!!
***Jonathan has asked that I make this blog private, so I will be switching to the private setting this week. If you would like to be able to see our pictures, please send me an email at smajor711@gmail.com with the subject of blogger account and give me your email address so I can add you. You can also just leave me a comment on this posting with the information and I will add you that way as well.***
Hugs,
Samantha
Hugs,
Samantha
7 WAYS YOU CAN HELP!
7 WAYS YOU CAN HELP!
1. Donate Blood - Most children with CHD require at least one blood transfusion. It is important that they have blood! Micah required tons of blood from donors. An infant does not have enough blood in their body at birth to be able to be put on the heart-lung machine for open heart surgery, so without donors, there would be no surgery, and Micah would not be here today. He also required a number of blood and platelet donations after his surgeries. You can donate blood all day today at Medical City for our support group!! You can also contact the American Red Cross or Carter Blood Care to set up appointments for a more convenient time. But please, please, please, if you are able, donate blood.
2. Donate Money - I know with the economy the way it is right now that this is hard. Trust me - we struggle just like everyone else. We are becoming a nonprofit very soon....you can donate straight to Micah's group!! www.heartnhands.org
Another great organization is the Chloe Duyck Memorial Fund...I am friends with Michelle Duyck, Chloe's mom, who started the fund after they lost Sweet Chloe to Hypoplastic Left Heart Syndrome in 2004. Her website is http://www.chloeduyckmemorial.com/
There are a few other nonprofit congenital heart funds that are set up around the country that give their funds directly to congenital heart research, so if you need some more links to look at, feel free to ask me :)
3. Support a group in your local area. See if there is a support group around, see if you can help them out. We need more than just money. We need volunteers!
4. Become an organ donor - and make sure that your loved ones know that you want to donate your organs.
5. Find a cause....and work for them. Sell some lemonade this summer. Donate to an organization or to a family that needs some extra help.
6. Educate! Share your knowledge. There are so many heart families out there. People that I never knew had heart kids. You never know when you might be talking to someone like that.
7. Support. Support families that are walking down this road. It is a tough path. Be there for them. Offer a shoulder to cry on...a meal....babysitting...whatever you can do to provide a little support for a special family.
Happy Heart Day!! This day is so much more to our family than chocolates and flowers now, it is about raising the awareness to everyone that February 14th is a day to celebrate the actual heart and finding a way to help these babies born with broken hearts.
Lots of Love!
Samantha
1. Donate Blood - Most children with CHD require at least one blood transfusion. It is important that they have blood! Micah required tons of blood from donors. An infant does not have enough blood in their body at birth to be able to be put on the heart-lung machine for open heart surgery, so without donors, there would be no surgery, and Micah would not be here today. He also required a number of blood and platelet donations after his surgeries. You can donate blood all day today at Medical City for our support group!! You can also contact the American Red Cross or Carter Blood Care to set up appointments for a more convenient time. But please, please, please, if you are able, donate blood.
2. Donate Money - I know with the economy the way it is right now that this is hard. Trust me - we struggle just like everyone else. We are becoming a nonprofit very soon....you can donate straight to Micah's group!! www.heartnhands.org
Another great organization is the Chloe Duyck Memorial Fund...I am friends with Michelle Duyck, Chloe's mom, who started the fund after they lost Sweet Chloe to Hypoplastic Left Heart Syndrome in 2004. Her website is http://www.chloeduyckmemorial.com/
There are a few other nonprofit congenital heart funds that are set up around the country that give their funds directly to congenital heart research, so if you need some more links to look at, feel free to ask me :)
3. Support a group in your local area. See if there is a support group around, see if you can help them out. We need more than just money. We need volunteers!
4. Become an organ donor - and make sure that your loved ones know that you want to donate your organs.
5. Find a cause....and work for them. Sell some lemonade this summer. Donate to an organization or to a family that needs some extra help.
6. Educate! Share your knowledge. There are so many heart families out there. People that I never knew had heart kids. You never know when you might be talking to someone like that.
7. Support. Support families that are walking down this road. It is a tough path. Be there for them. Offer a shoulder to cry on...a meal....babysitting...whatever you can do to provide a little support for a special family.
Happy Heart Day!! This day is so much more to our family than chocolates and flowers now, it is about raising the awareness to everyone that February 14th is a day to celebrate the actual heart and finding a way to help these babies born with broken hearts.
Lots of Love!
Samantha
Friday, February 13, 2009
Thursday, February 12, 2009
CHD Fact Sheet
More CHD Awareness!
Congenital Heart Defects in Children Fact Sheet
What is a congenital heart defect?
Congenital heart defects are structural problems with the heart present at birth. They result when a mishap occurs during heart development soon after conception and often before the mother is aware that she is pregnant. Defects range in severity from simple problems, such as "holes" between chambers of the heart, to very severe malformations, such as complete absence of one or more chambers or valves.
Is all heart disease in children congenital?
No, but most is. These defects are usually but not always diagnosed early in life. Rarely, heart disease is not congenital but may occur during childhood such as heart damage due to infection. This type of heart disease is called acquired; examples include Kawasaki disease and rheumatic fever. Children also can be born with or develop heart rate problems such as slow, fast, or irregular heart beats, known as "arrhythmias".
Who is at risk to have a child with a congenital heart defect?
Anyone can have a child with a congenital heart defect. Out of 1000 births, 8 babies will have some form of congenital heart disorder, most of which are mild. If you or other family members have already had a baby with a heart defect, your risk of having a baby with heart disease may be higher.
How many people in the United States have a congenital heart defect?
About 1 million Americans have a congenital heart defect. Approximately 35,000 babies are born with a defect each year.
Why do congenital heart defects occur?
Most of the time we do not know. Although the reason defects occur is presumed to be genetic, only a few genes have been discovered that have been linked to the presence of heart defects. Rarely the ingestion of some drugs and the occurrence of some infections during pregnancy can cause defects.
How can I tell if my baby or child has a congenital heart defect?
Severe heart disease generally becomes evident during the first few months after birth. Some babies are blue or have very low blood pressure shortly after birth. Other defects cause breathing difficulties, feeding problems, or poor weight gain. Minor defects are most often diagnosed on a routine medical check up. Minor defects rarely cause symptoms. While most heart murmurs in children are normal, some may be due to defects.
How serious is the problem?
Congenital heart defects are the most common birth defect and are the number one cause of death from birth defects during the first year of life. Nearly twice as many children die from congenital heart disease in the United States each year as die from all forms of childhood cancers combined. Over 91,000 life years are lost each year in the United States due to congenital heart disease. Charges for care exceed $2.2 billion for inpatient surgery alone.
Are things improving?
Definitely. Overall mortality has significantly declined over the past few decades. For example, in the 1960s and 1970s the risk of dying following congenital heart surgery was about 30 percent and today it is around 5 percent.
How well can people with congenital heart defects function?
Virtually all children with simple defects survive into adulthood. Although exercise capacity may be limited, most people lead normal or nearly normal lives. For more complex lesions, limitations are common. Some children with congenital heart disease have developmental delay or other learning difficulties.
What is the social/financial impact of congenital heart defects?
Successful treatment requires highly specialized care. Severe congenital heart disease requires extensive financial resources both in and out of the hospital. Children with developmental delay also require community and school-based resources to achieve optimum functioning.
What is the impact of congenital heart disease on families?
The presence of a serious congenital heart defect often results in an enormous emotional and financial strain on young families at a very vulnerable time. Patient/family education is an important part of successful coping.
Where can I get additional information?
You can get additional information from the American Heart Association. You can reach them by calling 1-800-AHA-USA1 (1-800-242-8721) or via the Internet at www.americanheart.org/children.
Heart Hugs,
Samantha
Congenital Heart Defects in Children Fact Sheet
What is a congenital heart defect?
Congenital heart defects are structural problems with the heart present at birth. They result when a mishap occurs during heart development soon after conception and often before the mother is aware that she is pregnant. Defects range in severity from simple problems, such as "holes" between chambers of the heart, to very severe malformations, such as complete absence of one or more chambers or valves.
Is all heart disease in children congenital?
No, but most is. These defects are usually but not always diagnosed early in life. Rarely, heart disease is not congenital but may occur during childhood such as heart damage due to infection. This type of heart disease is called acquired; examples include Kawasaki disease and rheumatic fever. Children also can be born with or develop heart rate problems such as slow, fast, or irregular heart beats, known as "arrhythmias".
Who is at risk to have a child with a congenital heart defect?
Anyone can have a child with a congenital heart defect. Out of 1000 births, 8 babies will have some form of congenital heart disorder, most of which are mild. If you or other family members have already had a baby with a heart defect, your risk of having a baby with heart disease may be higher.
How many people in the United States have a congenital heart defect?
About 1 million Americans have a congenital heart defect. Approximately 35,000 babies are born with a defect each year.
Why do congenital heart defects occur?
Most of the time we do not know. Although the reason defects occur is presumed to be genetic, only a few genes have been discovered that have been linked to the presence of heart defects. Rarely the ingestion of some drugs and the occurrence of some infections during pregnancy can cause defects.
How can I tell if my baby or child has a congenital heart defect?
Severe heart disease generally becomes evident during the first few months after birth. Some babies are blue or have very low blood pressure shortly after birth. Other defects cause breathing difficulties, feeding problems, or poor weight gain. Minor defects are most often diagnosed on a routine medical check up. Minor defects rarely cause symptoms. While most heart murmurs in children are normal, some may be due to defects.
How serious is the problem?
Congenital heart defects are the most common birth defect and are the number one cause of death from birth defects during the first year of life. Nearly twice as many children die from congenital heart disease in the United States each year as die from all forms of childhood cancers combined. Over 91,000 life years are lost each year in the United States due to congenital heart disease. Charges for care exceed $2.2 billion for inpatient surgery alone.
Are things improving?
Definitely. Overall mortality has significantly declined over the past few decades. For example, in the 1960s and 1970s the risk of dying following congenital heart surgery was about 30 percent and today it is around 5 percent.
How well can people with congenital heart defects function?
Virtually all children with simple defects survive into adulthood. Although exercise capacity may be limited, most people lead normal or nearly normal lives. For more complex lesions, limitations are common. Some children with congenital heart disease have developmental delay or other learning difficulties.
What is the social/financial impact of congenital heart defects?
Successful treatment requires highly specialized care. Severe congenital heart disease requires extensive financial resources both in and out of the hospital. Children with developmental delay also require community and school-based resources to achieve optimum functioning.
What is the impact of congenital heart disease on families?
The presence of a serious congenital heart defect often results in an enormous emotional and financial strain on young families at a very vulnerable time. Patient/family education is an important part of successful coping.
Where can I get additional information?
You can get additional information from the American Heart Association. You can reach them by calling 1-800-AHA-USA1 (1-800-242-8721) or via the Internet at www.americanheart.org/children.
Heart Hugs,
Samantha
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